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Make your voice heard and raise the public profile of the MRF and melanoma by empowering others to take action on the issues that matter! 

 

Advocacy News Updates

 

OTC Monograph Reform:

The House of Representatives has passed legislation, HR 5333. If passed by the Senate and signed into law it would overhaul the FDA regulatory approval processes for over-the-counter (OTC) drugs and new sunscreen ingredients. The legislation would include new sunscreen ingredient approval and regulatory processes. Current sunscreen ingredients that are pending FDA approval would continue to follow the regulatory process of the Sunscreen Innovation Act. However, new ingredient applications not currently pending with the FDA would be reviewed under the new OTC process. Manufacturers may request pending orders to be transferred to the new monograph review process. 

The MRF appreciates the efforts to conform sunscreen regulation as part of the larger OTC monograph reform effort and to provide flexibility for review of sunscreen ingredients with pending orders, while streamlining the review and approval process for new ingredient applications in the proposed new monograph system.

 

MRF Priorities

Federal:

  • Department of Defense Funding - In September 2018, the Congress passed, and the President signed into law, H.R. 6157, the Fiscal 2019 Department of Defense Appropriations bill, which included for the FIRST TIME a $10 million separate line item for Defense-funded melanoma research. Previously, Congress approved separate line items in the Defense funding bill for breast, prostate and ovarian cancers. With this action, Congress joined with The Pulse, the online source for the military’s Uniformed Services University, in recognizing that “melanoma is the most significant cancer to affect the active duty military population. As Congress begins working on Defense spending bills for Fiscal 2020, with discussions beginning this February, the MRF will work on securing another round of funding for the Defense-funded melanoma research program.
  • National Institutes of Health/National Cancer Institute-funded Melanoma Research - Support inclusion of Melanoma-specific language under NCI in Fiscal 2019 Labor, Health and Human Services Appropriations bill AND support $32 billion for NIH in Fiscal 2019 Labor, Health and Human Services Appropriations bill
  • Centers for Disease Control and Prevention's Skin Cancer Prevention Activities - Support $5 million for CDC's Skin Cancer Prevention activities in Fiscal 2019 Labor, Health and Human Services Appropriations bill
  • Tanning and Food and Drug Administration's Regulation of Tanning Beds - Support for the FDA's proposed restriction on indoor tanning devices by minors under the age of 18
  • Consensus Healthcare Reform Principles - Any reform measure must support a healthcare system that provides affordable, accessible, adequate and understandable healthcare coverage and preserves the coverage provided to millions through Medicare and Medicaid

State:

The MRF supports state-level legislation that protects minors from excess exposure to UV radiation that could lead to dangerous skin cancers.

  • Age Restrictions on Indoor Tanning - Support an under 18 tanning bed ban, without exemption for parental consent or physician's note. Currently, Arizona, Arkansas, Iowa, Kentucky, Montana, New Mexico, New York, Oklahoma and West Virginia have introduced legislation that meets this criteria.
  • Access to Sunscreen in Schools - Did you know that the FDA regulates sunscreen as an OTC (over-the-counter) drug and many states require children to obtain a physician's note or forgo utilizing sunscreen while at school or school-related activities? The MRF supports policies that allow students access to sunscreen during the school day, without requiring a physician's note or prescription. So far, seventeen states (AL, AZ, CA, FL, IN, LA, MD, MI, NY, OH, OK, OR, PA, TX, UT and WA) have adopted SUNucate protections.  

Whether you choose to send a fax, e-mail or make a phone call is up to you. The most important thing is that they hear from you. 

For more information, contact advocacy@melanoma.org.

Make it personal

Help change the landscape for melanoma by personally telling your Congressional delegation how they can combat the fastest growing cancer in the United States.

  1. Familiarize yourself with Advocacy using the advocacy Toolkit below, courtesy of our partners at Bristol-Myers Squibb
  2. Find the name and contact information for your Senators and Representatives and send them a letter . Or, you can call the Capitol Switchboard at (202) 224-3121 to be connected with your congressional offices
  3. Tell them why melanoma research and prevention efforts are important to you and ask them to support our key asks​        

Grassroots Advocacy Tool Kit - Courtesy of BMS