Ocular Melanoma Resources

The MRF's CURE OM initiative provides ocular melanoma patients with the most up-to-date resources available. Below are a list of resources specific to ocular melanoma. You might also like to view our CURE OM Brochure or past issues of Eye on OM, the CURE OM e-newsletter. Want to educate others on ocular melanoma? View the Ocular Melanoma Fact Sheet.

Educational Resources

In-Person & Virtual Events

Eyes on a Cure: Patient & Caregiver Symposium

The 2019 Eyes on a Cure: Patient & Caregiver Symposium will be on April 5-7, 2019 in Raleigh, NC! Join ocular melanoma patients, survivors and caregivers to learn the very latest news in OM research and treatment development from internationally renowned researchers, physicians and ocular melanoma experts. In addition to the scientific agenda, CURE OM will also offer a full schedule of wellness activities like family communication exercises, mindfulness workshops, caregiver support and more.

Register today for this free event, and out-of-town attendees are encouraged to take advantage of the discounted hotel rates available in the CURE OM room block. Stay tuned for additional details and a draft agenda coming soon!

The MRF offers free ocular melanoma educational events on a regular basis. These events are dedicated to melanoma patients and the people that support them. Patients, caregivers, friends, loved ones and healthcare providers are welcome to participate. Take a look at our past ocular melanoma educational events here:

Physician Lists 

For an up to date list of treatment centers that specialize in eye cancers like ocular melanoma, visit the Eye Cancer Network to find specialists in the US and more than 50 countries around the world. For additional assistance in locating OM treatment resources, please email to cureom@melanoma.org

Questions to Ask Your Doctor

Doctor's visits can be overwhelming. These questions can help guide your conversations with your doctor or your treatment team. 

Ask the MRF Nurse

Do you have a specific, more medically based question? If so, you can submit your question to the MRF nurse by emailing askanurse@melanoma.org. You can expect a personalized answer from our experienced nurse within 72 hours. Learn more about the MRF's nurse here

Clinical Trial Finder

The MRF’s Clinical Trial Finder will help you understand which emerging ocular melanoma treatments may be an option for you. Clinical trials offer OM patients the opportunity to receive care that may not yet be the standard. You can access the MRF's Clinical Trial Finder online or by phone at 1-800-517-2218.

Financial Resources

Visit our Financial Resources page to learn about organizations that provide financial assistance to patients. 

Connect with Others

CURE OM Forum

The CURE OM Forum is an online bulletin board where ocular melanoma patients, caregivers and their loved ones can talk with other OM patients and caregivers from around the world. Visit the CURE OM Forum to read posts or sign up to create your own posts!

MRF Volunteer Buddy Program

The MRF Buddy Program program provides newly diagnosed ocular melanoma patients with non-professional, emotional support from someone who has "been there". To get involved as a patient, caregiver or volunteer, please call (202) 347-9675 or email volunteer@melanoma.org.

CURE OM Support Groups

The CURE OM has partnered with Thomas Jefferson University to offer ocular melanoma support groups. Learn more here!

Social Media

Connect with the MRF and CURE OM on Facebook, Twitter and You Tube!

Ocular Melanoma Resources, Organizations & Blogs

It's easy to forget that you are not alone. Below are blogs that share supportive perspectives and insight.

  • EyeCare America - a program through the American Academy of Ophthalmology that offers free medical eye exams for those who qualify.
  • OcuMel UK - a registered England charity supporting those affected by ocular melanoma.
  • FightCancerWithMe - a blog by Tom Loverro, diagnosed with choroidal melanoma.
  • LostEye - written by Jay Adkisson, who lost his eye to choroidal melanoma in 2000. LostEye includes support and links to resources for people who have lost an eye to cancer or other injury.
  • The Eyes Have It - a blog by Dove Karn, diagnosed with ocular melanoma.
  • Read CURE OM director Sara Selig's blog post on StandUp2Cancer on love, life and caring for her husband Gregg, who lost his battle with ocular melanoma in January 2012.
  • EyeMelanoma.org - highlights educational and support resources available online for patients and their families.

Know of other blogs or resources you think others would find useful? Let us know - email us at cureom@melanoma.org.